基于家庭角度的精神障碍患者及其家属病耻感及主观幸福感相关性研究

OSID:Fu Yumin1, Wu Dongmei1, Yang Lei2, Tang Yixun1, He Changjiu1,
投稿时间:2021-03-31  修订日期:2021-08-19
DOI:
中文关键词:  精神障碍  患者  家属  病耻感  主观幸福感
英文关键词:mental disorder patients  family members  stigma  subjective well-being
基金项目:基于隐马尔可夫模型的精神分裂症患者攻击发展分类及 预测研究(面上);成都市精神康复资源现状与对策分析
作者单位地址
傅育敏* 成都市第四人民医院 成都市第四人民医院
吴冬梅 成都市第四人民医院 
杨蕾 成都医学院护理学院 
唐以薰 成都市第四人民医院 
何昌九 成都市第四人民医院 
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中文摘要:
      目的 了解精神障碍患者及其共同居住的家属的病耻感与主观幸福感现状,并探索同一家庭中患者及其家属的主观幸福感受病耻感影响的差异。方法 采用方便抽样,2019年10月-11月在成都市某精神专科三甲医院门诊就诊的精神障碍患者及其家属共308人,患者与家属成对进行问卷调查,采用自编一般人口学资料调查表、精神疾病相关资料调查表、病耻感感受问卷(ISMI-10)及幸福感指数问卷(IWB)进行调查。结果 共有118名(76.62%)精神障碍患者以及151名(98.05%)共同居住家属出现病耻感感受。家属的ISMI-10总评分及各因子评分高于患者(P<0.01),IWB评分低于患者(P<0.01),差异均有统计学意义;Pearson相关分析显示,患者及家属的ISMI-10总评分与IWB评分均呈负相关(患者r=-0.600,P<0.01;家属r=-0.202,P<0.05)。多元线性回归分析显示,在控制人口学及疾病相关变量后,居住在同一家庭的精神障碍患者回归模型拟合较好(校正R2=0.457),模型具有统计学意义(F=26.746,P<0.01),病耻感是主观幸福感的重要预测变量。精神障碍患者家属回归模型拟合较差(校正R2=0.035),在控制家属人口学变量后,模型具有统计学意义(F=3.769,P<0.01)。结论 精神障碍患者与家属的病耻感与主观幸福感之间存在明显相关性。患者的病耻感对其自身主观幸福感影响较大,但家属的主观幸福感受家庭成员患精神障碍的影响并不明显。精神障碍患者病耻感是主观幸福感的关键预测因素。
英文摘要:
      Objective The study aimed to understand the status quo of stigma and subjective well-being of patients with mental disorders and their matched family members. Furthermore, it also explored the differences in the impact of stigma on the subjective well-being of patients and their family members. Methods A paired questionnaire survey was conducted on 308 patients with mental disorders and their matched family members who visited the outpatient department of a tertiary psychiatric hospital in Chengdu from October 17 to November 29, 2019 by convenience sampling. The questionnaire included demographic data, disease-related data, brief of Internalized Stigma of Mental Illness Scale (ISMI-10) and Index of well-being Scale (IWB). Results A total of 118 (76.62%) patients with mental disorders and 151 (98.05%) co-living family members experienced stigma. The each and total scores of ISMI-10 of family members were higher than those of patients (P<0.01), while the scores of IWB were lower than that of patients (P<0.01). Moreover, Pearson correlation analysis showed that the total ISMI-10 score of patients and family members was negatively correlated with IWB score (patients, r=-0.600,P<0.01; family members, r=-0.202,P<0.05). After controlling demographic and disease-related variables, multiple linear regression analysis showed that the stigma of patients with mental disorders had a stronger impact on their subjective well-being (adjust R2=0.457). The model is statistically significant (F=26.746, P<0.01), which indicted stigma is an important predictor of subjective well-being. The regression model of family members of patients with mental disorders had a poor fit (adjust R2=0.035). After controlling for family demographic variables, the model is statistically significant (F=3.769, P<0.01). Conclusion There was a significant correlation between stigma and subjective well-being of patients with mental disorders and their family members. Patients’ stigma had a greater influence on their own subjective well-being, however, the subjective well-being had a less impact on family members suffering from mental disorders. Patients’ stigma is a key predictor of subjective well-being.
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