Investigation on quality of life and needs of relatives of patients with mental disorders in hospice care
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English keywords:Tranquil care  Mental disorders  Quality of life  demand
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Author NameAffiliationAddress
zhangxiao Deyang Mental Health Center 德阳市精神卫生中心
zhangqian Deyang Mental Health Center 德阳市精神卫生中心
luocairun Deyang Mental Health Center 
zhanglingyan Deyang Mental Health Center 
xuruiyu Deyang Mental Health Center 
wujunmei Deyang Mental Health Center 
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      To investigate the quality of life and needs of relatives of patients with mental disorders in hospice care, in order to create a better medical care environment for patients to meet their needs. Methods 205 family members of patients with severe mental disorders were selected from two special psychiatric hospitals in Deyang City with convenient sampling method. Their quality of life and needs were investigated with the Chinese version of the World Health Organization Short Form of Quality of Life (WHO OL-BREF) and the Family Needs of Critically Ill Patients (CCFNI). Results Among 205 family members, 98 (47.8%) were male, with an average age of (54.8±12.9) years, and 107 (52.2%) were female, with an average age of (50.2±11.0) years. WHOQOL-BREF scored (68.08±9.98) in the physiological field, (63.82±9.39) in the psychological field, (70.73±12.61) in the social relations field, and (64.24±11.87) in the environmental field. Compared with the domestic general population, there were significant differences in other fields except the physiological field (t=3.066、9.845、16.109,P<0.01). The average scores of the five dimensions of CCFNI were (3.20±0.41) demand factor for disease assurance, (2.86±0.50) demand factor for information support, (2.79±0.46) demand factor close to patients, (2.35±0.47) demand factor for self comfort, and (2.60±0.44) demand factor for medical staff support. In terms of specific items,The number of family members who chose "Medical staff can answer my questions truthfully" was the largest, 194 [94.6%, 95% CI (0.92, 0.98)], and the number of family members who chose Item 28 "I hope to allow temporary leave from the hospital occasionally" was the smallest, 109 [53.2%, 95% CI (0.46, 0.60)]. Conclusion The quality of life of the family members of patients with mental disorders in hospice care may not be poor, and their needs mainly focus on the two aspects of condition assurance and information support.
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